|
|||||
|
Tuesday, December 21, 2004
For My Sisters The following was sent to me by a very dear friend written by Maureen K. Higgins. I want to pass it on to you. Many of you I have never even met face to face, but I've searched you out every day. I've looked for you on the Internet, on playgrounds and in grocery stores. I've become an expert at identifying you. You are well worn. You are stronger than you ever wanted to be. Your words ring experience, experience you culled with your very heart and soul. You are compassionate beyond the expectations of this world. You are my "sisters". Yes, you and I, my friend, are sisters in a sorority. A very elite sorority. We are special. Just like any other sorority, we were chosen to be members. Some of us were invited to join immediately, some not for months or even years. Some of us even tried to refuse membership, but to no avail. We were initiated in neurologist's offices and NICU units, in obstetrician's offices, in emergency rooms, and during ultrasounds. We were initiated with somber telephone calls, consultations, evaluations, blood tests, x-rays, MRI films, and heart surgeries. All of us have one thing in common. One day things were fine. We were pregnant, or we had just given birth, or we were nursing our newborn, or we were playing with our toddler. Yes, one minute everything was fine. Then, whether it happened in an instant, as it often does, or over the course of a few weeks or months, our entire lives changed. Something wasn't quite right. Then we found ourselves mothers of children with special needs. We are united, we sisters, regardless of the diversity of our children's special needs. Some of our children undergo chemotherapy. Some need respirators and ventilators. Some are unable to talk, some are unable to walk. Some eat through feeding tubes. Some live in a different world. We do not discriminate against those mothers whose children's needs are not as "special" as our child's. We have mutual respect and empathy for all the women who walk in our shoes. We are knowledgeable. We have educated ourselves with whatever materials we could find. We know the specialists in the field. We know the neurologists, the hospitals, the wonder drugs, the treatments. We know the tests that need to be done, we know the degenerative and progressive diseases and we hold our breath while our children are tested for them. Without formal education, we could become board certified in neurology, endocrinology and physiatry. We have taken on our insurance companies and school boards to get what our children need to survive, and to flourish. We have prevailed upon the State to include augmentative communication devices in special education classes and mainstream schools for our children with cerebral palsy. We have labored to prove to insurance companies that medical necessity of gait trainers and other adaptive equipment for our children with spinal cord defects. We have sued municipalities to have our children properly classified so they could receive education and evaluation commensurate with their diagnosis. We have learned to deal with the rest of the world, even if that means walking away from it. We have tolerated scorn in supermarkets during "tantrums" and gritted our teeth while discipline was advocated by the person behind us in line. We have tolerated inane suggestions and home remedies from well-meaning strangers. We have tolerated mother of children without special needs complaining about chicken pox and ear infections. We have learned that many of our closest friends can't understand what it's like to be in our sorority, and don't even want to try. We have our own personal copies of Emily Perl Kingsley's "A Trip to Holland" and Erma Bombeck's "The Special Mother." We keep them by our bedside and read and reread them during our toughest hours. We have coped with holidays. We have found ways to get our physically handicapped children to the neighbors' front doors on Halloween and have found ways to help our deaf children form the words, "Trick or treat." We have accepted that our children with sensory dysfunction will never wear velvet or lace on Christmas. We have painted a canvas of lights and a blazing Yule log with our words for our blind children. We have pureed turkey on Thanksgiving. We have bought white chocolate bunnies for Easter. And all the while, we have tried to create a festive atmosphere for the rest of our family. We've gotten up every morning since our journey began wondering how we'd make it through another day, and gone to bed every evening not sure how we do it. We mourn the fact that we never got to relax and sip red wine in Italy. We've mourned the fact that our trip to Holland has required much more baggage than we ever imagined when we first visited the travel agent. And we've mourned because we left for the airport without most of the things we needed for the trip. But we, sisters, we keep the faith always. We never stop believing. Our love for our special children and our belief in all that they will achieve in life knows no bounds. We dream of them scoring touchdowns and extra points and home runs. We visualize them running sprints and marathons. We dream of them planting vegetable seeds, riding horses and chopping down trees. We hear their angelic voices singing Christmas carols. We see their palette smeared with watercolors, and their fingers flying over ivory keys in a concert hall. We are amazed at the grace of their pirouettes. We never, never stop believing in all they will accomplish as they pass through this world. But in the meantime, my sisters, the most important thing to do, is hold tight to their little hands as together, we special mothers and our special children, reach for the stars! By Maureen K. Higgins by lilhoneypa at 02:55 pm
|
all about me Wendy Full time mommy Full time student Warning! Leads extremely boring life Photo Album Cast Page 100 Things About Me Come with us as DJ takes us all on an Asperger Adventure! daily reads 6767 Adventures in Autism The Aspie Diaries The Aspie Life Autism Diva Bloggg California Hammonds Domestic Pschology dooce Go Fug Yourself Hidden Laughter Is This The One? Left Brain Right Brain Mom With Attitude Mommy Guilt Moody Mama My Son Has Autism The Narcissist's Secrets Our Aspergers Teenage Boy Our Journey to Rescue Alec Penisnews Ponderethereal A La Aspie Pre Rain Man Autism specialneedsmom.com Sometimes Holland Feels Like Hell Stories of My Family Talking.to.Sweetface This Mom Tiny Voices In My Head daily links AutismLink Autism Key Autism-PDD Resources Network Autism Society of America Autism Today Center for the Study of Autism Child Find ED Law Feingold Program Floortime Future Horizons Getting The Truth Out OASIS The Out of Synch Child The Source US Autism & Asperger Association daily archives August 2005 July 2005 June 2005 May 2005 April 2005 March 2005 February 2005 January 2005 December 2004 November 2004 October 2004 September 2004 August 2004 July 2004 June 2004 May 2004 Copyright © lil bit O'honey productions daily inspiration Ten Things Every Child With Autism Wishes You Knew God Sent Me An Angel Patron Saint Welcome To Holland Heaven's Special Child A Special Little Boy daily details You are visitor number: Thanks for stopping by! ![]() Above image created by Dawn Stealing is encouraged! daily rings and things |
||||