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Friday, December 17, 2004
School Daze Evidently I need to go to school with DJ. I must have been absent years ago the day(s) they taught us how to use scissors to cut a straight line. DJ's going to think the elves were tipping the bottle when they were wrapping presents this year. Super NuThera A little background on WHY I decided to put DJ on Super NuThera: It all started when I was going to take PIC out for her birthday in August. Two days before, I had just purchased some Spiderman vitamins for DJ. Two days later, DJ decided he REALLY liked the vitamins. I came in from the from grocery shopping and saw him eating. Pops was asleep, of course. I asked what he was eating and told me the Spiderman vitamins. Mind you, my son never does stuff like this. Though I would never do this, I could probably leave him in the house and go out for a few hours. He would just sit there and watch TV, or play video games. I do put the meds up high (not like this matters, because his tall behind can reach everything I can), but that day Pops had given him his vitamins and he left them on the counter. So, of course I start to panic. I dump out all the vitamins and count them. He ate about 10 of them. Now I'm REALLY freaking out. I called poison control and told them what happened. Luckily, with his size and weight, he would need about 20 vitamins in order to even THINK about taking him to the ER. PHEW! But, seriously, I was scared beyond belief. Still being the scared, anal Mommy I am, I didn't go out that night. Instead we decided we'd throw a little party for PIC at the house. DJ's behavior was indescribable. He was talking (he does talk alot, but it's usually about movies or other stuff - narrowed interests), playing, being very very social. Major eye contact, focus, no tantrums, etc. Of course he was up until 3am with all those vitamins in his system. But I was amazed at the difference in him. I mentioned it on my Asperger support group. I joked around saying I should give him 10 vitamins a day if that's the kind of behavior I"m going to get. One of the fathers on there started telling me about dye free vitamins and how they're really great and show some improvements. He said his daughter was on Super NuThera and there were major improvements. I tried the regular dye free gummy vitamins. You can buy them at the local pharmacy. Saw small improvements but nothing major. After about 2 months, and many many days of research, I decided to go with the Super NuThera. He started on Super NuThera caplets a week or two before Thanksgiving. He's supposed to get 3 a day for his weight but being the anal Mommy I am, I started him on 1/2 pill. I increased his dosage by 1/2 pills every few days or so. At the beginning of December, he was up to 3 pills a day. 1 1/2 in the morning before school and 1 1/2 after school. The most prominent change was in his tantrums/meltdowns, whatever you want to call them. He has a very low tolerance for frustration. The littlest tiniest thing could set him off. I'm talking serious little things, such as picking up his jacket off the floor all the way up to bedtime. He argued with me about EVERYTHING. NOTHING was fair, etc, etc. With autistic kids, once they get frustrated, it's really hard to get them out of that "zone". The side effects (if you get any) are not severe-at all. One is an increase in hyperactivity. DJ is hyper already so I dont' really see any change in it. He's not hyper in a bad way...just always on the go. It really doesn't bother me. Parents have given their kids magnesia baths 3x a week to get rid of this side effect. Another one I heard is a tummy ache. Give the vitamins with food! Don't give them on an empty stomach. DJ never had a problem with this because I heard about this beforehand. I always gave it at breakfast and snacktime. The last known side effect are leg pains which means the dose is too high. I didn't start DJ on a high dose so I didn't have any problems with this. Three are just fine for him. It's pricey, but they worked for him. They do have trial sizes available for about $10 - they lasted me over a month. Today I just purchased the full size which costs $50 (540 pills). It will last approximately 6 months. But $50 is really nothing to me as long as it works. DJ can swallow pills, which is why I give him the caplets. He is on no other meds, no other vitamins. I heard the powders and liquids are horrible tasting no matter what you mix them in. One parent I know whose child will not swallow pills takes the capsules. The open up the capsules and put it in a bowl of pudding. No problems. I was going to start DJ on the Feingold Diet in January (which is a step under the gluten free casein free diet.) His teacher and I discussed and I'm going to hold off on it. She didn't see improvements at first but an adult aspie I know told me it takes about 6 weeks to get them to start working at full strength. He hasn't been on the three pills for six weeks yet and we want to see how he acts on them next month. Maybe there will be more improvements. There has been one or two days he hasn't gotten his afternoon dose. Watch out! The frustrations come back that easily. Thursday, December 16, 2004
GOOD NEWS!!! I love me some good news! Yesterday I had a parent/teacher conference at DJ's school. His teacher told me DJ is doing SO MUCH BETTER with the new vitamins I have him on. I am so glad. I have been noticing a significant improvement at home, but they haven't really seen it at school except in the past few weeks. His tantrums have basically become non-existant. Well, I guess because there used to be so many, they seem so little now. He doesn't get as frustrated as much. She said he's doing well on all of his classwork. He's starting to pay attention more. She thinks as the weeks progress, he might be less distracted. His report card was all B's and 2 C's. The C's were in Art and Music. (HUH?) True, DJ is not big on art...AT ALL! But he loves music. Absolutely loves music. But, I don't care. As long as he passes and he's doing well on the other subjects I'll be happy. All in all, I'm a happy camper with the report. Now I don't feel too bad for dropping $300 on him for Christmas. I still don't know about all this mainstream stuff. I don't think they'll be able to mainstream him without meds and I'm really not trying to go that route. All the kids in his class are medicated. Luckily DJ is so cute, they ignore the fact he is mega hyper. His teacher actually put bungee cords on his chair so he wouldn't rock out of it. In school they've been learning about the different holiday traditions. We're sort of catholic:) He comes home the other day and decides we need to start celebrating Hanakkuh (sp?) and Kwanzaa along with Christmas every year. Whatever, little man. If that's what you want, that's what you'll get. I did tell him though to only expect presents at Christmas. The other holidays we're just going to celebrate spiritually. No gift giving. Momma's wallet can't take the hit! This weekend I'm going out to pick up the Kwanzaa candles and stuff because we have to start celebrating that on the 26th. Looks like Dec 2005 is going to be a little busy for me:) I think he's just looking for an excuse to party. What Is Dubya Doing? Ok, not REALLY. But this picture of him is hilarious. Matter of fact I can't even describe it. Take a stroll over to Teeters's Thoughtpad and check it out. Wednesday, December 15, 2004
Ms. Popularity It seems as if I'm a popular one. Why, you ask? Remember Mr. Big and the lightbulb fiasco. Mr. Big is up to his old tricks. Didn't I break up with his sorry ass way back when? How come he kissed me today in the elevator? What the fuck was that all about? Don't I have enough problems (men=problems)? Lucky for him the elevator doors opened right away and there was people standing there so he didn't get to hear what was on mind. Such as WHY THE FUCK ARE YOU KISSING ME? Naughty, But Lots of Fun! So Dawn and Michelle want more. So here goes. This guy works and lives at my apartment complex. About a year ago he came to fix something and I thought this guy was H - O - T!!!! His lips - he has this habit of licking his lips while he's talking. It's one of the sexiest things I've ever seen! He has dreamy bedroom eyes and...wait, I digress. Of course I see him all the time. He FINALLY asked me for my number a little while ago and we've been talking and hanging out since then. The first time was kind of rushed so it wasn't as great as I thought it would be:) But last night, WOW. As I said, he rocked my world. He's definitely a keeper. To break it all down, he's hot, funny, intelligent, and he's great in bed. What more could a girl ask for??? Let's not forget, he can fix EVERYTHING. Ahhh, life is so good. Merry Christmas to me:) Tuesday, December 14, 2004
What the....? My world got rocked tonight. WOW! Oh. My. God. How the hell did that happen? Now I need to get myself to bed. (That's never happened before either.) Holiday Letter to Family and Friends As we all know, holidays can be a stressful time for our kids. Especially, those kids with autism or the like. Personally, I do all my "partying" at home. Which of course means I do all the cooking:) Everyone is invited. This way, if DJ needs to chill out, he can go into another room and feel comfortable. Others aren't able to do this. Here is a holiday letter you can share with your family and friends. (I actually do post this up so people can read it.) I understand that we will be visiting each other for the holidays this year! Sometimes these visits can be very hard for me, but here is some information that might help our visit to be more successful. As you probably know, I am challenged by a hidden disability called autism or what some people refer to as a pervasive developmental disorder (PDD). Autism/PDD is a neuro-developmental disorder which makes it hard for me to understand the environment around me. I have barriers in my brain that you can't see but which make it difficult for me to adapt to my surroundings. Sometimes I may seem rude and abrupt, but it is only because I have to try so hard to understand people and at the same time, make myself understood. People with autism have different abilities: some may not speak, some write beautiful poetry, others are whizzes in math (Albert Einstein was thought to be autistic), or have difficulty making friends. We are all different and need various degrees of support. Sometimes when I am touched unexpectedly, it might feel painful and make me want to run away. I get easily frustrated, too. Being with lots of other people is like standing next to a moving freight train and trying to decide how and when to jump aboard. I feel frightened and confused a lot of the time, like you would if you landed on an alien planet and didn't understand how the inhabitants communicated. This is why I need to have things the same as much as possible. Once I learn how things happen, I can get by ok. But if something, anything changes, then I have to relearn the situation all over again! It is very hard. When you try to talk to me, I often can't understand what you say because there is a lot of distraction around. I have to concentrate very hard to hear and understand one thing at a time. You might think I am ignoring you -- I am not. Rather, I am hearing everything and not knowing what is most important to respond to. Holidays are exceptionally hard because there are so many different people, places and things going on that are out of my ordinary realm. This may be fun and adventurous for most people, but for me, it's very hard work and can be extremely stressful. I often have to get away from all the commotion to calm down. It would be great if you had a private place set up to where I could retreat. If I cannot sit at the meal table, do not think I am misbehaved or that my parents have no control over me. Sitting in one place for even 5 minutes is often impossible for me. I feel so antsy and overwhelmed by all the smells, sounds, and people -- I just have to get up and move about. Please don't hold up your meal for me -- go on without me and my parents will handle the situation the best way they know. Eating in general is hard for me. If you understand that autism is a sensory processing disorder, it's no wonder eating is a problem! Think of all the senses involved with eating: sight, smell, taste, touch AND all the complicated mechanics that are involved with chewing and swallowing that a lot of people with autism have trouble with. I am not being picky -- I literally cannot eat certain foods as my sensory system and/or oral motor coordination are impaired. Don't be disappointed If mommy hasn't dressed me in starch and bows. It's because she knows how much stiff and frilly clothes can drive me buggy! I have to feel comfortable in my clothes or I will just be miserable! Temple Grandin, a very smart adult with autism, has taught people that when she had to wear stiff petticoats as a child, she felt like her skin was being rubbed with sandpaper. I often feel the same way in dressy clothes. When I go to someone else's house, I may appear bossy and controlling. In a sense, I am being controlling because that is how I try to fit into the world around me (which is so hard to figure out!) Things have to be done in a way I am familiar with or else I might get confused and frustrated. It doesn't mean you have to change the way you are doing things -- just please be patient with me and understanding of how I have to cope ... mom and dad have no control over how my autism makes me feel inside. People with autism often have little things that they do to help themselves feel more comfortable. The grown ups call it "Self regulation," or "stimming'. I might rock, hum, flick my fingers in my face, flap my arms or any number of different things. I am not trying to be disruptive or weird. Again, I am doing what I have to do for my brain to adapt to your world. Sometimes I cannot stop myself from talking, singing, or partaking in an activity. The grown ups call this "perseverating" which is kinda like self regulation or stimming. I do this only because I have found something to occupy myself that makes me feel comfortable, and I don't want to come out of that comfortable place and join your hard-to-figure-out-world. Perseverative behaviors are good to a certain degree because they help me calm down. Please be respectful to my mom and dad if they let me "stim" for awhile as they know me best and what helps to calm me. Remember that my mom and dad have to watch me much more closely than the average child. This is for my own safety, preservation of your possessions, and to facilitate my integration with you tippies (what we autistics fondly call you neurotypical folk!). It hurts my parents' feelings to be criticized for being over protective or condemned for not watching me close enough. They are human and have been given an assignment intended for saints. My parents are good people and need your support. Holidays are filled with sights, Sounds, and smells. The average household is turned into a busy, frantic, festive place. Remember that this may be fun for you tippies but it's very hard work for me to conform. If I fall apart or act out in a way that you consider socially inappropriate, please remember that I don't possess the neurological system that is required to follow tippy rules. I am a unique person -- an interesting person. I will find my place at this celebration that is comfortable for us all as long as you'll try to view the world through my eyes! Please pass this along to families you feel may benefit from it ... it has already helped us this past Thanksgiving. Monday, December 13, 2004
12 and 1 Yeppers, we won...AGAIN. Unfortuntely, didn't help me much on my football pool. I needed them to win by 10:( The Game This has been the longest 2 minutes!!!!!!!
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